Possibly one of the hardest things I’ve dealt with related to my (stupid) Crohn’s is the decision to blog. Sharing intimate details about my life with the world is hard, and I admire people like Amy Tendrich and Drew Olanoff, who do it and do it well. There are many, many people in my life who don’t even know I have Crohn’s, because I’ve chosen to keep it secret for so long.
I think ultimately I’ve decided to do this because with a stigmatized condition like Crohn’s, it IS hard to talk about publicly, so I hope that if I talk about it, others will too. And if we’re all talking about it, maybe it won’t be so hard to talk about anymore.
My name is Carly, and I have Crohn’s Disease.
I hate it. It’s stupid. It keeps me from getting to do everything I want to do in life. It causes me pain. It costs me money. I never asked for this stupid disease. I can’t get rid of it. It messes with my body, it messes with my mind, and sometimes it messes with my relationships. I hate that one day I will have to explain to my daughter why I have to go into the hospital, and why I have to take so much medication. I hate that because of this, I have to be so much better at balancing the rest of my life just to make room. Crohn’s, you suck.
But I know I’m not alone. And I hope to hear from others with their own battles with stupid Crohn’s, stupid IBD, stupid any stigmatized condition.