Today is day two of a conference I’m attending that focuses, essentially, on how new media can help patients. Some of the highlights:
A presentation by ePatientDave, who not only survived terminal cancer, but became an inspirational patient advocate as a result. He has just published a book about his experiences, and I can’t wait to read it.
Learning about a Novartis initiative which utilized a play and videos on Youtube to show what young people with Cystic Fibrosis actually go through. This reminded me a bit of two efforts for Crohn’s Disease, True Guts, which was created by someone with CD; and Innerstate, which was created by Centocor (they make Remicade.)
The giveaways include a fitbit and a ZEO – two devices that monitor your health in different ways, which I will be testing and reporting in future posts.
My main takeaway so far – I think it’s excellent when companies (which are the ones with the money) use their resources to help – REALLY HELP – patients. There are some horrible examples of companies focusing only on greed and I’ve seen just the opposite at this conference, it’s really fantastic.