Category Archives: ePatient

Barking Dog Shoes

During one of several conversations with Chronic Babe (aka Jenni)¬†at ePatient Connections, our convo turned to shoes. This happens whenevver women converse for more than 10 minutes, or so I believe based on years of experience. Since my Crohn’s manifests in joint pain and because my hips are chronically out of whack, I need to wear comfortable flats, despite the fact that my inner badass would rather be in 6-inch Laboutin stillettoes. Jenni’s shoes were adorable AND looked comfortable, and she highly recommended her friend’s site Barking Dog Shoes. Holy moly, this place is a relevation.

They’ve got answers for any type of foot problem (although it seems to just be for women, sorry guys.) They try out and recommend brands. What a fantastic resource.

CNN Fighting Words Against Crohn’s Disease

“Today I will fight again. This disease will not own me or define me.”

These are the words I like to begin each day with, stating my intent out loud. Somehow it seems if I actually hear it, it’s easier to live it and believe it.

I have Crohn’s disease, for which there is no cure — a disease that requires a daily personal battle with things most of us prefer not to discuss with others. And for those who must deal with it, one thing is certain. It’s horrible, it’s overwhelming, and it’s humiliating.

 

I could have written the same thing. But those words aren’t mine, they’re from CNN’s Debbi Wynn, who offers her Crohn’s disease manifesto online today. Her story is poignant, but she’s not alone. We are not alone.

 

Remember when we had to suffer in silence?

Agorafabulous

I’m currently reading a fantastic book about horrific anxiety called “Agorafabulous: Dispatches from my Bedroom.” It’s a tough read. True, it’s funny – VERY funny. True, the author is a good writer and the words flow well. But also true, it’s painful to get through. Sara Benincasa is such a good writer that you can’t help but feel everything she feels along with her. And what she feels is pain, shame, anxiety, terror – I am only a few chapters in and I know that never before have I fully understood what true anxiety is really like.

I met Sara several years ago – I’m a PR person and she was a reporter. I speak with dozens of reporters, but she stood out because she was so funny and interesting. I remember chatting with her on the phone about nothing in particular because I just couldn’t seem to tear myself away. Her book is like that. Like reading a friend’s journal, and not being able to stop.

I never would have guessed in my truly superficial talks with Sara that she had gone through anything like what she discusses in her book. At the same time, I doubt she would have known that when we were talking, I was battling Crohn’s and – at the time – losing. Because if there’s anything you want when you’re fighting an incurable illness, it’s to be normal.