Tag Archives: adapting

CCFA Ad Campaign + New (to me) Blog

What do you think of the CCFA’s current ad campaign? It centers around the bathroom as essentially a jail for people with Crohn’s & UC. I think it’s one of the few times an IBD organization has really faced the embarrassing truth around what IBD is really all about and I have to give them kudos. Especially because several friends emailed me photos of the campaign when they saw it and just felt compelled to send them to me. It’s a good sign when a campaign is shareable.

escapethestall-300x300

I noticed Blood, Poop & Tears had a little something to say about it too: http://www.bloodpooptears.com/the-ccfa-ad-campaign-aint-no-party-like-a-butt-hurt-party/

No Way. NO WAY. No Way.

So, as I posted the other day, I’m getting creeped out by having to exercise outside in the dark, even though I live in a safe neighborhood. I was wishing that my apartment building was fancier with a gym inside, because then I could exercise inside without even having to step outside. Even one treadmill would be nice.

So this morning I decided instead of going outside I’d do my speed walking in the building’s basement. It’s a really large building, and even though we’ve lived there a year I’ve still not explored all of it. I was hoping that doing laps in the basement would be interesting, and would definitely be warmer and less comfortable than going outside. Imagine my complete and utter surprise this morning when I turned the corner on lap one to find an exercise room. NO WAY. Seriously. An exercise room. It’s nothing fancy, in fact it’s part of one of the laundry rooms, but it has two treadmills and an eliptical trainer. No way! I am saved!

Barking Dog Shoes

During one of several conversations with Chronic Babe (aka Jenni) at ePatient Connections, our convo turned to shoes. This happens whenevver women converse for more than 10 minutes, or so I believe based on years of experience. Since my Crohn’s manifests in joint pain and because my hips are chronically out of whack, I need to wear comfortable flats, despite the fact that my inner badass would rather be in 6-inch Laboutin stillettoes. Jenni’s shoes were adorable AND looked comfortable, and she highly recommended her friend’s site Barking Dog Shoes. Holy moly, this place is a relevation.

They’ve got answers for any type of foot problem (although it seems to just be for women, sorry guys.) They try out and recommend brands. What a fantastic resource.

It’s Getting Dark in Here

Since the PT said I can start exercising again, I’ve been going out again in the morning. All summer long, 5:15 a.m. was a joy – the sun was rising, it was the perfect temperature. Now, not so much. It’s cooler and so dark that I’m too creeped out to use my ipod, even though we live in a totally save neighborhood. I’m getting nervous about keeping up with this through the winter, when it’s icy outside and my bed is still nice and warm.

Physical Therapy

I lurve my physical therapist. Luuurve.

I was able to get an appointment immediately, because I’ve gone in the past. After my daughter was born, my hips were out of whack. (It’s not easy having a ginormous baby on my tiny frame. Or any frame. Anyway.)

This PT specializes in women, and was able to get me back on track last time. This time around, I’m already having the same positive experience. It’s a different therapist, but it’s the same – caring, capable.

She told me my knee issue is actually my hip issue all over again. She said I need to keep doing my hip exercises for life (I’d kept on for a few years but evenually stopped.)  And most importantly, she told me I WILL be able to run again. Hip hip hooray!

So I’ll be going weekly for a while, as she adjusts and manipulates and basically turns me from a NYC pretzel into a Philly pretzel.  Until then, I’ve started with power walking. Not nearly as therapeutic as running, but better than nothing.

Image from Walgreens.com

Oh and I get to wear a snazzy knee brace while I do it. It’s uncomfortable, but on the plus side it makes me look like even more of a dork keeps me from injuring myself more.

Running Therapy

I’m trying hard to go about my life, but I keep having to go to doctors and get blood tests and put everything on hold because of my stupid body. In other words, same old. But this time, it’s not because of Crohn’s.

As those who’ve been reading know, I started running about two months ago. I’ve been doing Chubby Jones’ couch to 5k in an effort to get in shape and not lose my mind. But a few weeks ago, my knee started to hurt while I was running. Then it started to hurt even when I wasn’t running. So here I go again to the doctor, but this time it’s the orthopedist. And at the same time, I’m still doing my weekly blood tests that I’ve had to do since the miscarriage, so they can see if my hormone levels are still raised. (Ben and Jerry’s can tell you based on how well their stock is doing that yes indeed my hormones are still raised, but that’s another topic, thankyouverymuch Chocolate Therapy.)

Image from Ben & Jerry’s website.

Anyway. Since I was diagnosed with Crohn’s about a decade ago, going to the doctor is pretty much old hat. But for the first time in a while I’m going and I don’t really feel confident that I know what I’m doing. Should I be going to an orthopedist or Dr. Max, my rheumatologist? Does my knee hurt because of the running, my stupid Crohn’s, or the miscarriage maybe? So I’ve been doing what any geek worth her salt does today – crowdsourcing. I’ve been asking EVERYONE’s opinion. My sister, who runs triathlons, told me I’ll have to get an orthopedist someday so may as well do it now. My friend Eugene, who does Tough Mudder (crazy bastard) thought it was weird that I was having knee problems and told me that I should be having shin splints instead. My friend Mo, who doesn’t run but does have RA and takes Humira like I do, told me I shouldn’t be running at all and that instead I should ride a bike. He’s never seen me try to ride a bike, so I can’t blame him for the recommendation. But watching me trying to ride a bike is like watching a toddler try to send an email. It’s a little cute, mostly awkward, you know it’s not going to work and probably someone is going to get hurt. Last time we went for a little afternoon ride, a man my dad’s age in a car pulled over to shout encouragement out his window – it was that clear to passing motorists that I was a mess. Anyway.

So I made an appointment for next Friday at the orthopedist’s, and I’m going to give Dr. Max a call today. I’m also going to see my new GI next week, so I feel like I have all the bases covered.

Because here’s the thing – I need to keep running. Before I started, I was sliding into a deep dark place that I don’t think I could have gotten out of any other way. I joke that running has saved my sanity, but joking aside – running has saved my sanity.

My Super Sister

If running was AA, my sister would be my sponsor. She answers all my questions, sends me inspiring texts, and generally keeps me on the running wagon.

She’s the person who knows me well enough to have said “Running is great, you don’t have to buy anything to start – you just need a pair of shoes. Plus, you can buy all this great running gear!”‘

But that’s not even the half of it. Because even though she lives far away and even though she is responsible for her 1-year-old, when I had the miscarriage she came right away bearing sympathy and jokes and ice cream. I’m the big sister and she’s the little sister, and yet she came and took care of me. And she continues to do so, checking in and just making sure I’m ok.

And it’s the running – which she’s helping me with – that has helped me stay sane. I think I’m handling everything pretty well but it still hurts a lot. I still have blood tests every week and I still have that little bit of leftover belly and I still have my daughter asking me, whenever she sees a pregnant woman, if that lady’s baby is going to die. So as counter to my personality as it is, I still admit I need that little bit of support. But I don’t have a little bit, I have a lot.

Thanks, Sis. I wish I could buy you Lululemon‘s entire summer line. And fall line and winter line and spring line.

I’m also so grateful to my parents, my brother and my friends who turned out in droves to support our family. Every single bit has helped so much.